Eosinophilic gastroenteritis (EGE) is a rare digestive disorder where white blood cells called eosinophils build up in your stomach and intestines. This buildup causes inflammation and can lead to various uncomfortable symptoms. Understanding this condition can help you recognize symptoms early and work with your healthcare provider to find the right treatment.
Table of Contents
- What Is Eosinophilic Gastroenteritis?
- Symptoms of Eosinophilic Gastroenteritis
- Who Gets Eosinophilic Gastroenteritis?
- Diagnosis Challenges
- Treatment Options
- Comparison with Eosinophilic Esophagitis
- Clinical Trial Considerations
- Living with Eosinophilic Gastroenteritis
- Future Research Directions
- When to See a Doctor
- Conclusion
What Is Eosinophilic Gastroenteritis?
Eosinophilic gastroenteritis belongs to a group of conditions called eosinophilic gastrointestinal diseases (EGIDs). These conditions occur when eosinophils, which normally help fight infections and parasites, accumulate in parts of your digestive system where they don’t belong.
EGE specifically affects the stomach and small intestine. It’s different from eosinophilic esophagitis (EoE), which affects only the esophagus, though both conditions involve similar inflammatory processes (1).
Symptoms of Eosinophilic Gastroenteritis
Symptoms can vary depending on which layer of your digestive tract is affected. People with EGE often experience gastrointestinal symptoms that can be unspecific and easily confused with other conditions.
Common Symptoms
The most frequent symptoms include:
- Abdominal pain
- Nausea and vomiting
- Diarrhea
- Weight loss
- Bloating
These symptoms were noted in a systematic review of 20 cases where EGE was associated with autoimmune conditions. The review found that gastrointestinal symptoms were often unspecific (2).
Less Common Presentations
In some cases, EGE can cause more serious complications. When it affects the pancreas, it may lead to pancreatitis. A systematic review found no significant difference in symptoms between people with eosinophilic pancreatitis and those with pancreatitis associated with eosinophilic gastroenteritis (3).
Who Gets Eosinophilic Gastroenteritis?
EGE can affect people of all ages, but certain groups may be at higher risk.
Association with Other Conditions
EGE often occurs alongside other health conditions. Research shows important connections with:
Autoimmune Diseases: Among people with both EGE and autoimmune conditions, systemic lupus erythematosus is the most common (35%), followed by rheumatoid arthritis (20%), and systemic sclerosis or inflammatory myopathies (15% each) (2).
Autism Spectrum Disorder: Recent research suggests there may be a connection between EGIDs and autism spectrum disorder (ASD). A meta-analysis indicates that both conditions might be related to problems with the intestinal barrier (4).
Allergies: Unlike eosinophilic esophagitis, where allergies are common, most people with EGE associated with autoimmune diseases don’t have a history of allergies (2).
Racial Differences
Research has shown differences in how eosinophilic gastrointestinal disorders affect different racial groups. A systematic review of 2,621 patients found variations in presentation between Caucasians and Asians (5).
Diagnosis Challenges
Diagnosing EGE can be challenging because its symptoms overlap with many other digestive conditions.
Endoscopy Findings
When doctors perform endoscopy (a procedure to look inside your digestive tract), they may not always see abnormal findings. In fact, upper endoscopy shows abnormal findings in only 40% of cases, while lower endoscopy shows abnormalities in just 30% of cases (2).
Tissue Biopsy
The definitive diagnosis requires finding eosinophils in tissue samples from your digestive tract. These inflammatory cells are typically found in the mucosal or submucosal layers of the stomach or intestines.
Interestingly, while certain features like basal plasmacytosis and mucosal eosinophilia were thought to help distinguish between inflammatory bowel disease and other types of colitis, a recent systematic review found that these features don’t reliably differentiate between the conditions (6).
Treatment Options
Treatment for EGE aims to reduce inflammation and control symptoms. Several approaches have shown promise in clinical studies.
Corticosteroids
Corticosteroids are often the first treatment choice. In the systematic review of EGE cases associated with autoimmune diseases, 95% of patients had favorable outcomes with corticosteroid treatment (2).
Newer Targeted Therapies
Recent research has explored new treatments that specifically target eosinophils:
Benralizumab: This medication targets the interleukin-5 receptor and helps deplete eosinophils. A phase 2 trial at Cincinnati Children’s Hospital Medical Center studied its effectiveness for eosinophilic gastritis, a related condition (7).
Treatment Trends
A systematic review of clinical trials found that treatment research for EGIDs is expanding. The review examined multiple therapeutic interventions and methods of administration being investigated (1).
Comparison with Eosinophilic Esophagitis
While EGE and eosinophilic esophagitis (EoE) are related conditions, they have important differences.
Location and Prevalence
EoE affects only the esophagus and is becoming more common. In Asia, the prevalence of EoE increased from 19.8 per 100,000 individuals in 2005-2009 to 73.0 per 100,000 individuals in 2015-2019 (8).
Unlike EoE which is primarily found in the esophagus, EGE can affect different parts of the digestive system. Among EGID cases associated with autoimmune diseases, eosinophilic gastritis and/or enteritis represented 95% of cases, while eosinophilic esophagitis is less common in this population (2).
Food Impaction Risk
Food getting stuck in the esophagus (food impaction) is a common complication of EoE but is less common with EGE. A meta-analysis found that among people who had food impaction and underwent biopsies, 54% were diagnosed with EoE (9).
Treatment Response
Treatment approaches for EoE have been extensively studied. A network meta-analysis comparing treatments for EoE found that topical steroids may be effective, though controversy remains about optimal treatment (10).
Clinical Trial Considerations
Understanding clinical trials is important if you’re considering participating in research for EGE treatment.
Placebo Response Rates
Clinical trials for eosinophilic gastrointestinal diseases often show high placebo response rates. This means some people improve even when receiving inactive treatment. A meta-analysis examined placebo rates across different outcomes in EoE trials to help design better future studies (11).
Standardizing Treatment Outcomes
Researchers are working to standardize how treatment success is measured. A network meta-analysis comparing pharmacological interventions for EoE in adults and children examined histological outcomes to help determine the most effective treatments (12).
Living with Eosinophilic Gastroenteritis
Managing EGE often requires ongoing care and lifestyle adjustments.
Monitoring Your Condition
Regular follow-up with your healthcare provider is important. This may include:
- Periodic blood tests to check eosinophil levels
- Symptom tracking to assess treatment effectiveness
- Repeat endoscopies to monitor tissue inflammation
- Adjusting medications based on your response
Managing Related Conditions
Since EGE often occurs with other conditions, comprehensive care is important. If you have an autoimmune disease, managing both conditions together may improve outcomes. The research shows that in most cases where EGE occurs with autoimmune diseases, the autoimmune condition is diagnosed first (2).
Quality of Life Considerations
EGE can significantly impact your daily life. Working with a healthcare team that understands the condition can help you develop strategies to manage symptoms and maintain your quality of life.
Future Research Directions
Research into eosinophilic gastrointestinal diseases continues to evolve, offering hope for better treatments.
Understanding Disease Mechanisms
Scientists are working to better understand why eosinophils accumulate in the digestive tract. The connection between EGIDs and conditions affecting the intestinal barrier, such as autism spectrum disorder, may provide new insights into disease mechanisms (4).
Developing New Treatments
Clinical trials are investigating various new approaches to treating EGIDs. The systematic review of treatment trends shows that research is expanding to include different therapeutic interventions and delivery methods (1).
Global Perspectives
As awareness of eosinophilic gastrointestinal diseases grows worldwide, more research is emerging from different regions. The increasing prevalence documented in Asia suggests these conditions may be more common than previously thought (8).
When to See a Doctor
Recognizing when to seek medical attention is crucial for getting proper diagnosis and treatment.
Warning Signs
You should see a healthcare provider if you experience:
- Persistent abdominal pain that doesn’t improve
- Unexplained weight loss
- Chronic diarrhea or vomiting
- Difficulty swallowing or food getting stuck
- Blood in your stool
Getting the Right Diagnosis
Because EGE symptoms overlap with many other conditions, getting an accurate diagnosis is important. Don’t hesitate to ask for a referral to a gastroenterologist if your symptoms persist despite initial treatment.
Is eosinophilic gastroenteritis the same as food allergies?
Can children get eosinophilic gastroenteritis?
Will I need to take medication forever?
Conclusion
Eosinophilic gastroenteritis is a complex condition that requires careful diagnosis and management. While it can significantly impact your quality of life, effective treatments are available. Most people with EGE respond well to treatment, with 95% showing favorable outcomes with appropriate therapy.
As research continues, our understanding of EGE and related conditions improves. New treatments are being developed, and clinical trials offer hope for even better options in the future. If you suspect you might have EGE, work with your healthcare provider to get an accurate diagnosis and develop a treatment plan that works for you.
Remember that EGE is manageable, and with the right care, you can control your symptoms and maintain a good quality of life. Stay informed about new developments, maintain regular follow-ups with your healthcare team, and don’t hesitate to seek support when you need it.